Our Story

On November 6, 2018, our beautiful 9-year-old daughter Joanna passed away in her sleep. This tragic event was a shock to our family and our entire community. Though this is a parent’s worst nightmare, we cannot succumb to the paralyzing grief we feel, because we need to stay strong for Joanna’s sisters, Isabella(12), Andriana(10) and baby brother Raphael(4). Most importantly, we refuse to let Joanna’s tragic passing define her memory. We want to remember Joanna for her carefree personality and adventurous character. She would always try new activities without hesitation, even if she knew she would not be the best at it. Joanna was always smiling and singing, and had a love for musicals. Her most recent love was “The Greatest Showman.” After Joanna passed away, we found the most wonderful video of Joanna singing “Never Enough” by Loren Allred and quickly, it brought some light into our life and guided us by its words.

Facts About Epilepsy

It is estimated that approximately 3.4 million in the United States have active epilepsy, and more than 65 million globally. Additionally, 1 in 26 people will develop epilepsy at some point during their lifetime. Epilepsy can begin at any age. Studies haven’t identified a prime diagnosis time, but the incidence rate is highest in young children under 2 and adults aged 65 or older. We will host fundraising events in memory of Joanna to give financial aid to those in need. We hope to inspire others with Joanna’s personality and positive outlook on life. We would love to hear your story and help if possible. Please reach out to us if you or someone you know is in need.

65 Million

People around the world have epilepsy

3.4 Million

In the united states

1 in 26

People will develop epilepsy at some point in there life

JUNE 26, 2021

JOANNA SOPHIA 5K FUN RUN

This is the second annual Joanna Sophia Fun Run.

Climbing up
Kilimanjaro

- Walk Amongst the Angels

SUDEP AWARENESS

It has been two years since our daughter became our angel. Not a minute goes by that we don’t think of her silly humor and her giggling moments with her siblings. What used to be our normal Friday family night, where everyone would enjoy a movie and feel comfort in silence is no longer there. Our wish is for our children to maintain the innocence they had prior to our tragedy. For us, it would be a blessing for them to have that moment again, but the odds are not in our favor. As parents we should be the guiding light for our families and rise up to inspire them and others to not let negativity bring them down. Rather, we strive to bring positivity in our lives and to encourage them to conquer anything that comes their way.

I will do it!

Copyright © 2021 Joanna Sophia Foundation.
All rights reserved.
Get in Touch

11-01 154th Street
Whitestone NY, 11357

joannasophiafoundation@gmail.com

917-579-9464